For Patients

About this Directory

The CureHHT Physician Directory was created to help patients and their families find a medical professional in the United States and Canada who is knowledgeable about the diagnosis, treatment and management of this rare disease. It contains doctors associated with the HHT Centers of Excellence as well as doctors and medical personnel that treat HHT in their community.

Cure HHT provides this information as a service to patients and does not specifically endorse any individual physician. All information has been provided by the doctors so patients can make their own assessment of each doctors' qualifications.

Doctors that have updated their own profiles within the last 12 months are highlighted.

What is a Center of Excellence?

An HHT Center of Excellence is a facility that meets rigorous standards for having a well-rounded staff that is capable of diagnosing HHT and treating a wide variety of symptoms. Doctors at a Center of Excellence have the most up-to-date information about HHT treatment and research, and are required to participate in ongoing education related to HHT. Cure HHT encourages patients to seek care from doctors with experience and expertise in HHT.

How do I get a family member tested?

Contact the nearest Center of Excellence and ask to speak with a Genetics Counselor. They can help you find resources in your area to get tested.

Disclaimer

All of the information the Cure HHT Physician Directory, including that of the Centers of Excellence, is self-reported and Cure HHT makes no warranties about the credentials of any of the people listed herein. The information provided on the Cure HHT website is provided for general information only. It is not intended as legal, medical or other professional advice and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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