North American HHT Centers of Excellence
United States
1120 15th Street
BBR 5513
Augusta, GA 30912-3135
United States Contact
Janie Sims, RN
Tel: 706-721-0470 Fax: 706-446-2815
Director: James Gossage, M.D.
3333 Burnet Avenue
Cincinnati, OH 45229
United States Contact
Shannon Thornberry, BSN, RN II, CPHON
Program Coordinator
513-636-2084
Director: Adrienne Hammill, M.D., Ph.D., Manish Patel, DO
9500 Euclid Avenue
Desk A90
Cleveland, OH 44195
United States Contact
Doug Pederson, RN
Patient Care Coordinator
phone: 216-445-3636 fax: 216-636-2054
Director: Joseph Parambil, M.D., Keith McCrae, M.D.
9200 W Wisconsin Avenue
Milwaukee, WI 53226
United States Contact
Kristen Gilbert
HHT Program Coordinator
414-805-3666 or 1-800-272-3666 (patients) 414-805-4700 (physician consult)
Director: Jake Decker, MD
1800 Orleans Street
Interventional Radiology Center, Charlotte Bloomberg Bldg, Suite 3287
Baltimore, MD 21287
United States Contact
NEW PATIENTS: Johns Hopkins USA/Registration
Abby ext. 38033; Carlos ext. 38032; Racquel ext. 38032
RETURNING PATIENTS: Gina Robinson, MSN, RN, HHT Coordinator
[email protected]; 410-357-9817 (during COVID pandemic)
410-464-6555 (All Appts) / (410) 955-2307 (ENT)
Director: Clifford Weiss, M.D.
55 Fruit Street
Boston, MA 2114
United States Contact
Pulmonary Hypertension Clinic
(617) 724-3705
Director: Josanna Rodriguez-Lopez, MD, Hanny Al-Samkari, M.D.
200 1st Street SW
Rochester, MN 55905
United States Contact
Keri Jacobson
Tel: 507-284-2158
Director: Vivek Iyer, MD, MPH
Herbert Irving Pavilion
161 Fort Washington Avenue, 3rd Floor
New York, NY 10032
United States Contact
Jentyne Hamm
HHT Center Coordinator
212-305-7470
Director: Keith Brenner, MD, Vladimir Sheynzon, MD, MBA
3181 SW Sam Jackson Park Road, OHSU L-605
Portland, OR 97239
United States Contact
Kathleen Phillips, RN, BSN
Patient Care Coordinator
Brittany Steed, MA
New HHT Referral Intake
Tel: 503-494-7660
Director: Mark Chesnutt, M.D.
300 Pasteur Drive
Stanford, CA 94305
United States Contact
Sheetal Vaghela, RN, BSN
Nurse Coordinator
650-498-1764
Director: Edda Spiekerkoetter, M.D., David Stevenson, M.D.
4301 W Markham Street
Little Rock, AR 72205
United States Contact
Lindsey Wyerick, RN
501-352-8159
Director: Mary Elizabeth (Mollie) Meek, MD
185 Berry Street, Suite 350, Lobby 6
San Francisco, CA 94107
United States Contact
Daniel Langston, NP
Torianna Lomax, MS
HHT Patient Care Coordinator
(415) 353-8867 / 415-353-4503 (fax)
Director: Miles Conrad, M.D., MPH, Steven Hetts, M.D.
100 Medical Plaza
Suite 100
Los Angeles, CA 90095
United States Contact
HHT Center Administrator
310-481-7545
Director: Justin McWilliams, M.D., Gary Duckwiler, M.D.
5841 S Maryland Avenue
Chicago, IL 60637
United States Contact
New Patient Referrals: 773-702-2123
Zeena Darji, RN (Clinic Coordinator)
Current Patients: 773-702-4347
Zeena Darji, RN (Clinic Coordinator)
Emergency Referrals: 855-834-4782
Director: Issam Awad, M.D., MSc, FACS, MA
12605 E 16th Avenue
Aurora, CO 80045
United States Contact
Robin Hohsfield, RN
HHT Coordinator
720-848-5300
Director: Paul Rochon, M.D., Peter Hountras, M.D.
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC 27517
United States Contact
Karen Smith, RN
Coordinator
919-966-2790
Director: Raj Kasthuri, MBBS, M.D.
3400 Spruce Street
1115 Penn Tower
Philadelphia, PA 19104-4283
United States Contact
Mary O'Dea
Assistant to Dr. Scott Trerotola
Phone: 215-615-3540 Fax: 215-615-3545
Director: Scott Trerotola, M.D.
5303 Harry Hines Boulevard
Dallas, TX 75390
United States 214-645-2100
Director: John Battaile, MD
30 North 1900 East
Room 4A100
Salt Lake City, UT 84132-2140
United States Contact
Cherisa Chappell
HHT Patient Care Coordinator
801-581-8188
Director: Kevin Whitehead, M.D., Jamie McDonald, MS, CGC
200 Lothrop Street
Pittsburgh, PA 15213
United States Contact
Jessica Romania, BSN, RN
Program Coordinator
412-648-6161 (ask for UPMC HHT Center)
Director: Christopher Faber, M.D.
660 S Euclid Avenue
#8052
St. Louis, MO 63110-1093
United States Contact
Stacy Kocher, RN
Adult HHT Coordinator
Lynn Sekarski, RN
Pediatric Nurse Coordinator
314-454-8671 (adult) 314-454-2479 (pediatric)
Director: Murali Chakinala, M.D., FCCP, Andrew J. White, M.D.
PO Box 208042
New Haven, CT 06520
United States Contact
Katharine Henderson, MS, CGC
Tel: 203-737-1427 Fax: 203-737-1077
Director: Jeffrey Pollak, M.D., Katharine Henderson, MS, CGC
Canada
300 Booth Drive
Winnipeg, MB R3J 3M7
Canada Contact
Mary Lou Waschuk
HHT Clinic Coordinator
204-837-0790
Director: Els Maria De Gussem, MD
University of Toronto / St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
Canada Contact
Rose Pantalone
Adult Coordinator
Susan Carpenter
Pediatric Coordinator
416-864-6060 ext. 2407 (Adult) 416-813-5837 (Pediatric)
Director: Marie Faughnan, M.D.
8440 112 Street NW
Edmonton, AB T6G 2B7
Canada 780-492-5879
Director: Dilini Vethanayagam, MD, FRCPC, Richard Owen, MB Bch, MRCP, FRCR, LMCC
CHUM
264 René-Lévesque East, 2nd floor
Montreal, QC H2X 1P1
Canada Contact
Anouk Gackowski, RN
514-890-8000 x 15672
