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North American HHT Centers of Excellence
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UAB University Hospital
Alabama
2000 6th Ave South, 2nd Floor
Birmingham
,
AL
35294
United States
Contact
Josie Harris, RN, BSN
Adult HHT Coordinator
Lindsey Chapman, RN, CPN
Pediatric HHT Coordinator
205-996-9647 (adult); 205-638-3487 (pediatric)
Director:
Jesse Jones, MD, Theresa Caridi, MD
University of Arkansas Medical Sciences
Arkansas
4301 W Markham Street
Little Rock
,
AR
72205
United States
Contact
Carrie Pendergrass, RN, BSN
501-352-8159
Director:
Mary Elizabeth (Mollie) Meek, MD
Barrow Neurological Institute
Arizona
350 West Thomas Road
Phoenix
,
AZ
85013
United States
Contact
Aimee Sanchez, RN
HHT Coordinator
1-888-BNI-4HHT
Director:
Akshay Muralidhar, MD
Stanford Health Care
California
300 Pasteur Drive
Stanford
,
CA
94305
United States
Contact
Sheetal Vaghela, RN, BSN
Nurse Coordinator
650-498-1764
Director:
Edda Spiekerkoetter, M.D., David Stevenson, M.D.
University of California, Los Angeles
California
100 Medical Plaza
Suite 100
Los Angeles
,
CA
90095
United States
Contact
Joanne Yang, NP
HHT Center Coordinator
310-481-7545
Director:
Justin McWilliams, M.D., Lucas Cusumano, MD, MPH
UC San Diego Health
California
UCSD Hemophilia and Thrombosis Treatment Center
9333 Genessee Ave Suite 310
San Diego
,
CA
92121
United States
Contact
Cris Cazares-Machado, RN
HHT Coordinator
858-657-6028
Director:
Jenny Zhou, MD, Annette von Drygalski, MD, PharmD, RMSK
University of California San Francisco
California
185 Berry Street, Suite 350, Lobby 6
San Francisco
,
CA
94107
United States
Contact
Daniel Langston, NP
Torianna Lomax Truong, MS
HHT Patient Care Coordinator
Phone: 415-353-8867; Fax: 415-353-4503
Director:
Miles Conrad, MD, MPH, Steven Hetts, M.D.
University of Colorado Hospital
Colorado
12505 E 16th Avenue
Aurora
,
CO
80045
United States
Contact
Shelby McBride, RN, BSN
HHT Coordinator
Heather Miller
HHT Coordinator
720-848-5300 (option 4)
Director:
Peter Hountras, M.D.
Yale University School of Medicine
Connecticut
Dept. of Radiology and Biomedical Imaging
PO Box 208042
New Haven
,
CT
06520
United States
Contact
Katharine Henderson, MS, CGC
Phone: 203-737-1427; Fax: 203-737-1077
Director:
Jeffrey Pollak, M.D., Katharine Henderson, MS, CGC
University of Miami Hospital
Florida
1150 NW 14th St, Suite 508
Miami
,
FL
33136
United States
Contact
Shannon Lange
HHT Clinic Administrator
Karla Valle
HHT Clinic Administrator
305-243-8270
Director:
Joseph Zikria, MD
University of Florida Health
Florida
1600 S.W. Archer Road
Gainesville
,
FL
32610
United States
Contact
Christina Eagan, DNP, ARNP, FNP-BC
HHT Center Coordinator
Please use HHT Center website to schedule appointments.
352-273-8990
Director:
Ali Ataya, MD
Augusta University
Georgia
1120 15th Street
BBR 5513
Augusta
,
GA
30912-3135
United States
Contact
Janie Sims, RN
Phone: 706-721-0470; Fax: 706-446-2815
Director:
James Gossage, MD
University of Chicago Medical Center
Illinois
5841 S Maryland Avenue
Chicago
,
IL
60637
United States
Contact
New Patient Referrals: 773-702-2123
Zeena Darji, RN (Clinic Coordinator)
Current Patients: 773-702-4347
Zeena Darji, RN (Clinic Coordinator)
Emergency Referrals: 855-834-4782
773-702-4347
Director:
Kenneth Cohen, MD
Massachusetts General Hospital
Massachusetts
55 Fruit Street
Boston
,
MA
02114
United States
Contact
Pulmonary Hypertension Clinic
617-724-3705
Director:
Josanna Rodriguez-Lopez, MD, Hanny Al-Samkari, M.D.
Johns Hopkins
Maryland
1800 Orleans Street
Interventional Radiology Center, Charlotte Bloomberg Bldg, Suite 3287
Baltimore
,
MD
21287
United States
Contact
ADULT PATIENTS: Sophia Kemble, MSN, RN
410-614-3934
PEDIATRIC PATIENTS: Leola Funderburk, CO
443-287-9015
Sophia Kemble, MSN, RN, HHT Coordinator
[email protected]
410-464-6555 (All Appts) / (410) 955-2307 (ENT)
Director:
Clifford Weiss, M.D., Panagis Galiatsatos, MD, MHS, Nicholas Rowan, MD
Mayo Clinic (MN)
Minnesota
200 1st Street SW
Rochester
,
MN
55905
United States
Contact
Keri Jacobson
HHT Clinic Coordinator
507-284-2158
Director:
Vivek Iyer, M.D., MPH
Washington University School of Medicine
Missouri
660 S Euclid Avenue
#8052
St. Louis
,
MO
63110-1093
United States
Contact
Stacy Kocher, RN
Adult HHT Coordinator
Katie Schultz
Pediatric HHT Coordinator
314-454-8671 (adult); 314-454-2479 (pediatric)
Director:
Murali Chakinala, M.D., FCCP, Bryan Sisk, MD, MSCI
University of North Carolina
North Carolina
6340 Quadrangle Drive
Suite 50
Chapel Hill
,
NC
27517
United States
Contact
Karen Smith, RN
Coordinator
919-966-2790
Director:
Raj Kasthuri, MBBS, M.D.
New York Presbyterian/ Columbia University Irving Medical Center
New York
Herbert Irving Pavilion
161 Fort Washington Avenue, 3rd Floor
New York
,
NY
10032
United States
Contact
Kelsey Weddig, RN, BSN
HHT Program Coordinator
Ana Perez
HHT Center Administrator
212-305-7470
Director:
Charles Murphy, MD, Vladimir Sheynzon, MD, MBA
Cincinnati Children's Hospital Medical Center
Ohio
3333 Burnet Avenue
Cincinnati
,
OH
45229
United States
Contact
Shannon Thornberry, BSN, RN III, CPHON
Program Coordinator
513-636-2084
Director:
Adrienne Hammill, M.D., Ph.D., Manish Patel, D.O.
Cleveland Clinic
Ohio
9500 Euclid Avenue
Desk A90
Cleveland
,
OH
44195
United States
Contact
Kasi Timmerman
Study Coordinator/Patient Care Coordinator
Phone: 216-445-3636; Fax: 216-636-2054
Director:
Joseph Parambil, M.D., Keith McCrae, M.D.
Oregon Health and Science University
Oregon
3181 SW Sam Jackson Park Road, OHSU L-605
Portland
,
OR
97239
United States
Contact
Brittany Steed, MA
Patient Care Coordinator and HHT Referral Intake
503-418-6725
Director:
Mark Chesnutt, M.D., Claire Kaufman, MD
University of Pennsylvania
Pennsylvania
3400 Spruce Street, 5 Silverstein
Suite 5100
Philadelphia
,
PA
19104
United States
Contact
Ala Streater
Clinical Coordinator
Ginna Dietrick CRNP
Interventional Radiology Nurse Practitioner
Phone: 215-662-3622 (adult); Phone: 215-590-3535 (pediatric); Fax: 215-614-0298
Director:
Scott Trerotola, M.D., Theodore Drivas, MD, PhD
UPMC and The University of Pittsburgh
Pennsylvania
200 Lothrop Street
Pittsburgh
,
PA
15213
United States
Contact
Karen Radziminski, RN
Clinical Coordinator
412-648-6161 (adult); 412-692-5070 (pediatric)-Ask for UPMC HHT Center
Director:
Christopher Faber, M.D.
Texas Children's Hospital
Texas
6701 Fannin Street, 14th Floor
Hematology Clinic
Houston
,
TX
77030
United States
Contact
Darla Espinoza MSN, RN
Coordinator
Phone: 832-822-3800; Fax: 832-825-9500
Director:
Amir Pezeshkmehr, MD, Ionela Iacobas, MD
University of Texas Southwestern
Texas
Professional Office Bldg 2, Suite 935
5939 Harry Hines Blvd.
Dallas
,
TX
75390-9253
United States
Contact
Nwando Ikedionwu RN
Coordinator
214-645-2100 (adult); 214-456-2857 (pediatric)
Director:
John Battaile, MD, An Lu, M.D.
University of Utah Medical Center
Utah
30 North 1900 East
Room 4A100
Salt Lake City
,
UT
84132-2140
United States
Contact
Cassidy Sion, RN, BSN
Coordinator
801-581-8188
Director:
Kevin Whitehead, M.D.
Froedtert & Medical College of Wisconsin
Wisconsin
9200 W Wisconsin Avenue
Milwaukee
,
WI
53226
United States
Contact
Kristen Gilbert
HHT Program Coordinator
Sydney Kamierczak
HHT Program Coordinator
414-805-3680 (adult); 414-266-8636 (pediatric); 414-805-4700 (physician consult)
Director:
Jake Decker, MD
Canada
Edmonton HHT Center
Alberta
University of Alberta
105C Clinical Sciences Building, 11350-83 Ave
Edmonton
,
AB
T6G 2B7
Canada
780-492-5879
Director:
Dilini Vethanayagam, MD, FRCPC, Richard Owen, MB Bch, MRCP, FRCR, LMCC
Winnipeg HHT Center
Manitoba
Grace Hospital AMC
300 Booth Drive
Winnipeg
,
MB
R3J 3M7
Canada
Contact
Mary Lou Waschuk
HHT Clinic Coordinator
Bonnie Clark
HHT Center Coordinator
204-837-0790
Director:
Els Maria De Gussem, MD
Toronto HHT Centre
Ontario
University of Toronto / St. Michael's Hospital
30 Bond St., Room 6049
Toronto
,
ON
M5B 1W8
Canada
Contact
Bethany Yake
Adult Coordinator
Nancy McDonald
Pediatric Coordinator
416-864-6060 ext. 2407 (adult); 416-813-5837 (pediatric)
Director:
Marie Faughnan, M.D., Felix Ratjen, MD, PhD, FRCP(C)
University of Montreal
Quebec
CHUM
264 René-Lévesque East, 2nd floor
Montreal
,
QC
H2X 1P1
Canada
Contact
Farah St-Pierre
Coordinator
514-890-8000 x 15672
Director:
Andreanne Gauthier , MD
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