North American HHT Centers of Excellence
Alabama
The Kirklin Clinic at UAB, Neuroscience One
2000 6th Ave South, 2nd Floor
Birmingham, AL 35233
United States Contact
Josie Harris, RN, BSN
Adult HHT Coordinator
Lindsey Chapman, RN, CPN
Pediatric HHT Coordinator
205-996-9647 (adult); 205-638-3487 (pediatric)
Director: Jesse Jones, MD, Theresa Caridi, MD
Arizona
Arizona Pulmonary Specialists
9060 East Via Linda, Suite 250
Scottsdale, AZ 85258
United States Contact
Aimee Sanchez, RN
HHT Coordinator
1-888-BNI-4HHT
Director: Akshay Muralidhar, MD
California
185 Berry Street, Suite 350, Lobby 6
San Francisco, CA 94107
United States Contact
Daniel Langston, NP
Torianna Lomax Truong, MS
HHT Patient Care Coordinator
Phone: 415-353-8867; Fax: 415-353-4503
Director: Miles Conrad, MD, MPH, Steven Hetts, M.D.
California
300 Pasteur Drive
Stanford, CA 94305
United States Contact
Sheetal Vaghela, RN, BSN
Nurse Coordinator
650-498-1764
Director: Edda Spiekerkoetter, M.D., David Stevenson, M.D.
California
100 Medical Plaza
Suite 100
Los Angeles, CA 90095
United States Contact
Joanne Yang, NP
HHT Center Coordinator
310-481-7545
Director: Justin McWilliams, M.D., Lucas Cusumano, MD, MPH
California
UCSD Hemophilia and Thrombosis Treatment Center
9333 Genessee Ave Suite 310
San Diego, CA 92121
United States Contact
Cris Cazares-Machado, RN
HHT Coordinator
858-657-6028
Director: Jenny Zhou, MD, Annette von Drygalski, MD, PharmD, RMSK
Colorado
12505 E 16th Avenue
Aurora, CO 80045
United States Contact
Shelby McBride, RN, BSN
HHT Coordinator
Heather Miller
HHT Coordinator
720-848-5300 (option 4)
Director: Peter Hountras, M.D., Jonathan Lindquist, MD
Connecticut
Dept. of Radiology and Biomedical Imaging
PO Box 208042
New Haven, CT 06520
United States Contact
Katharine Henderson, MS, CGC
Phone: 203-737-1427; Fax: 203-737-1077
Director: Jeffrey Pollak, M.D., Katharine Henderson, MS, CGC
Florida
1150 NW 14th St, Suite 508
Miami, FL 33136
United States Contact
Shannon Lange
HHT Clinic Coordinator
Yanet Cordovi, APRN, FNP-BC
HHT Clinic Coordinator
305-243-8270
Director: Joseph Zikria, MD
Florida
1600 S.W. Archer Road
Gainesville, FL 32610
United States Contact
Please use HHT Center website to schedule appointments.
352-273-8990
Director: Ali Ataya, MD
Georgia
1120 15th Street
BBR 5513
Augusta, GA 30912-3135
United States Contact
Janie Sims, RN
Phone: 706-721-0470; Fax: 706-446-2815
Director: James Gossage, MD, Paul Kirkpatrick, MD
Illinois
5841 S Maryland Avenue
Chicago, IL 60637
United States Contact
New Patient Referrals: 773-702-2123
Zeena Darji, RN (Clinic Coordinator)
Current Patients: 773-702-4347
Zeena Darji, RN (Clinic Coordinator)
Emergency Referrals: 855-834-4782
773-702-4347
Director: Kenneth Cohen, MD
Indiana
8326 Naab Road
Indianapolis, IN 46260
United States Contact
Shelby Gordon, RN, BSN
HHT Clinic Coordinator
(317) 871-0011 x1123
Director: Magdalena Lewandowska, MD, Manjusha Kumar, M.D.
Massachusetts
55 Fruit Street
Boston, MA 02114
United States Contact
Pulmonary Hypertension Clinic
617-724-3705
Director: Josanna Rodriguez-Lopez, MD, Hanny Al-Samkari, M.D.
Maryland
1800 Orleans Street
Interventional Radiology Center, Charlotte Bloomberg Bldg, Suite 3287
Baltimore, MD 21287
United States Contact
ADULT PATIENTS: Sophia Kemble, MSN, RN
410-614-3934
PEDIATRIC PATIENTS: Leola Funderburk, CO
443-287-9015
Sophia Kemble, MSN, RN, HHT Coordinator
410-464-6555 (All Appts) / (410) 955-2307 (ENT)
Director: Clifford Weiss, M.D., Panagis Galiatsatos, MD, MHS, Nicholas Rowan, MD
Minnesota
200 1st Street SW
Rochester, MN 55905
United States Contact
Keri Jacobson
HHT Clinic Coordinator
507-284-2158
Director: Vivek Iyer, M.D., MPH
Missouri
660 S Euclid Avenue
#8052
St. Louis, MO 63110-1093
United States Contact
Stacy Kocher, RN
Adult HHT Coordinator
Katie Schultz
Pediatric HHT Coordinator
314-454-8671 (adult); 314-454-2479 (pediatric)
Director: Murali Chakinala, M.D., FCCP, Bryan Sisk, MD, MSCI
North Carolina
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC 27517
United States Contact
Karen Smith, RN
Coordinator
919-966-2790
Director: Raj Kasthuri, MBBS, M.D.
New York
Herbert Irving Pavilion
161 Fort Washington Avenue, 3rd Floor
New York, NY 10032
United States Contact
Kelsey Weddig, RN, BSN
HHT Program Coordinator
212-305-7470 (adult & pediatric)
Director: Charles Murphy, MD, Vladimir Sheynzon, MD, MBA, Andrei Constantinescu, MD
Ohio
3333 Burnet Avenue
Cincinnati, OH 45229
United States Contact
Shannon Thornberry, BSN, RN III, CPHON
Program Coordinator
513-636-2084
Director: Adrienne Hammill, M.D., Ph.D., Manish Patel, D.O.
Ohio
9500 Euclid Avenue
Desk A90
Cleveland, OH 44195
United States Contact
Kasi Timmerman
Study Coordinator/Patient Care Coordinator
Phone: 216-445-3636; Fax: 216-636-2054
Director: Joseph Parambil, M.D., Keith McCrae, M.D.
Oregon
3181 SW Sam Jackson Park Road, OHSU L-605
Portland, OR 97239
United States Contact
Brittany Steed, MA
Patient Care Coordinator and HHT Referral Intake
503-418-6725
Director: Mark Chesnutt, M.D., Claire Kaufman, MD
Pennsylvania
3400 Spruce Street, 5 Silverstein
Suite 5100
Philadelphia, PA 19104
United States Contact
Ala Streater
Clinical Coordinator
Ginna Dietrick CRNP
Interventional Radiology Nurse Practitioner
Phone: 215-662-3622 (adult); Phone: 215-590-3535 (pediatric); Fax: 215-614-0298
Director: Scott Trerotola, M.D., Theodore Drivas, MD, PhD
Pennsylvania
200 Lothrop Street
Pittsburgh, PA 15213
United States Contact
Karen Radziminski, RN
Clinical Coordinator
412-648-6161 (adult); 412-692-5070 (pediatric)-Ask for UPMC HHT Center
Director: Christopher Faber, M.D.
Texas
6701 Fannin Street, 14th Floor
Hematology Clinic
Houston, TX 77030
United States Contact
Darla Espinoza MSN, RN
Coordinator
Phone: 832-822-3800; Fax: 832-825-9500
Director: Amir Pezeshkmehr, MD, Ionela Iacobas, MD
Texas
Professional Office Bldg 2, Suite 935
5939 Harry Hines Blvd.
Dallas, TX 75390-9253
United States Contact
Nwando Ikedionwu RN
Coordinator
214-645-2100 (adult); 214-456-2857 (pediatric)
Director: John Battaile, MD, An Lu, M.D.
Utah
30 North 1900 East
Room 4A100
Salt Lake City, UT 84132-2140
United States Contact
Cassidy Sion, RN, BSN
Coordinator
801-581-8188
Director: Kevin Whitehead, M.D.
Wisconsin
9200 W Wisconsin Avenue
Milwaukee, WI 53226
United States Contact
Sydney Kamierczak
HHT Program Coordinator
414-805-3680 (adult); 414-266-8636 (pediatric); 414-805-4700 (physician consult)
Director: Jake Decker, MD
Canada
Alberta
University of Alberta
105C Clinical Sciences Building, 11350-83 Ave
Edmonton, AB T6G 2B7
Canada 780-492-5879
Director: Dilini Vethanayagam, MD, FRCPC, Richard Owen, MB Bch, MRCP, FRCR, LMCC
Manitoba
Grace Hospital AMC
300 Booth Drive
Winnipeg, MB R3J 3M7
Canada Phone: 204-837-0790; Referral Fax: 204-837-0791
Director: Els Maria De Gussem, MD
Ontario
University of Toronto / St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
Canada Contact
Bethany Yake
Adult Coordinator
Nancy McDonald
Pediatric Coordinator
416-864-6060 ext. 2407 (adult); 416-813-5837 (pediatric)
Director: Marie Faughnan, M.D., Felix Ratjen, MD, PhD, FRCP(C)
Quebec
CHUM
264 René-Lévesque East, 2nd floor
Montreal, QC H2X 1P1
Canada Contact
Farah St-Pierre
Coordinator
514-890-8000 x 15672
Director: Andreanne Gauthier , MD
