North American HHT Centers of Excellence
Alabama
2000 6th Ave South, 2nd Floor
Birmingham, AL 35294
United States Contact
Josie Harris, RN, BSN
Adult HHT Coordinator
Lindsey Chapman, RN, CPN
Pediatric HHT Coordinator
205-996-9647 (adult) 205-638-3487 (pediatric)
Director: Jesse Jones, MD, Theresa Caridi, MD
Arkansas
4301 W Markham Street
Little Rock, AR 72205
United States Contact
Christine Star, RN
501-352-8159
Director: Mary Elizabeth (Mollie) Meek, MD
Arizona
350 West Thomas Road
Phoenix, AZ 85013
United States Contact
Jenna Steimer, RN
HHT Program Coordinator
1-888-BNI-4HHT
Director: Akshay Muralidhar, MD
California
300 Pasteur Drive
Stanford, CA 94305
United States Contact
Sheetal Vaghela, RN, BSN
Nurse Coordinator
650-498-1764
Director: Edda Spiekerkoetter, M.D., David Stevenson, M.D.
California
100 Medical Plaza
Suite 100
Los Angeles, CA 90095
United States Contact
Joanne Yang, NP
HHT Center Coordinator
310-481-7545
Director: Justin McWilliams, M.D., Gary Duckwiler, M.D.
California
185 Berry Street, Suite 350, Lobby 6
San Francisco, CA 94107
United States Contact
Daniel Langston, NP
Torianna Lomax Truong, MS
HHT Patient Care Coordinator
(415) 353-8867 / 415-353-4503 (fax)
Director: Miles Conrad, MD, MPH, Steven Hetts, M.D.
Colorado
12605 E 16th Avenue
Aurora, CO 80045
United States Contact
Shelby McBride, RN, BSN
HHT Coordinator
Heather Miller
HHT Coordinator
720-848-5300 (option 4)
Director: Peter Hountras, M.D.
Connecticut
Dept. of Radiology and Biomedical Imaging
PO Box 208042
New Haven, CT 06520
United States Contact
Katharine Henderson, MS, CGC
Tel: 203-737-1427 Fax: 203-737-1077
Director: Jeffrey Pollak, M.D., Katharine Henderson, MS, CGC
Florida
1600 S.W. Archer Road
Gainesville, FL 32610
United States Contact
Christina Eagan, DNP, ARNP, FNP-BC
HHT Center Coordinator
352-273-8990
Director: Ali Ataya, MD
Florida
1150 NW 14th St, Suite 508
Miami, FL 33136
United States Contact
Shannon Lange
HHT Clinic Administrator
(305) 243-8270
Director: Joseph Zikria, MD
Georgia
1120 15th Street
BBR 5513
Augusta, GA 30912-3135
United States Contact
Janie Sims, RN
Tel: 706-721-0470 Fax: 706-446-2815
Director: James Gossage, MD
Illinois
5841 S Maryland Avenue
Chicago, IL 60637
United States Contact
New Patient Referrals: 773-702-2123
Zeena Darji, RN (Clinic Coordinator)
Current Patients: 773-702-4347
Zeena Darji, RN (Clinic Coordinator)
Emergency Referrals: 855-834-4782
Director: Kenneth Cohen, MD
Massachusetts
55 Fruit Street
Boston, MA 2114
United States Contact
Pulmonary Hypertension Clinic
(617) 724-3705
Director: Josanna Rodriguez-Lopez, MD, Hanny Al-Samkari, M.D.
Maryland
1800 Orleans Street
Interventional Radiology Center, Charlotte Bloomberg Bldg, Suite 3287
Baltimore, MD 21287
United States Contact
ADULT PATIENTS: Sophia Kemble, MSN, RN
410-614-3934
PEDIATRIC PATIENTS: Leola Funderburk, CO
443-287-9015
Sophia Kemble, MSN, RN, HHT Coordinator
410-464-6555 (All Appts) / (410) 955-2307 (ENT)
Director: Clifford Weiss, M.D., Panagis Galiatsatos, MD, MHS
Minnesota
200 1st Street SW
Rochester, MN 55905
United States Contact
Keri Jacobson
HHT Clinic Coordinator
Debra Hillier, RN
HHT Nurse Coordinator
Tel: 507-284-2158
Director: Vivek Iyer, M.D., MPH
Missouri
660 S Euclid Avenue
#8052
St. Louis, MO 63110-1093
United States Contact
Stacy Kocher, RN
Adult HHT Coordinator
Katie Schultz
Pediatric HHT Coordinator
314-454-8671 (adult) 314-454-2479 (pediatric)
Director: Murali Chakinala, M.D., FCCP
North Carolina
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC 27517
United States Contact
Karen Smith, RN
Coordinator
919-966-2790
Director: Raj Kasthuri, MBBS, M.D.
New York
Herbert Irving Pavilion
161 Fort Washington Avenue, 3rd Floor
New York, NY 10032
United States Contact
Ana Perez
HHT Center Administrator
212-305-7470
Director: Charles Murphy, MD, Vladimir Sheynzon, MD, MBA
Ohio
3333 Burnet Avenue
Cincinnati, OH 45229
United States Contact
Shannon Thornberry, BSN, RN II, CPHON
Program Coordinator
513-636-2084
Director: Adrienne Hammill, M.D., Ph.D., Manish Patel, D.O.
Ohio
9500 Euclid Avenue
Desk A90
Cleveland, OH 44195
United States Contact
Kasi Timmerman
Study Coordinator/Patient Care Coordinator
phone: 216-445-3636 fax: 216-636-2054
Director: Joseph Parambil, M.D., Keith McCrae, M.D.
Oregon
3181 SW Sam Jackson Park Road, OHSU L-605
Portland, OR 97239
United States Contact
Brittany Steed, MA
Patient Care Coordinator and HHT Referral Intake
Tel: 503-418-6725
Director: Mark Chesnutt, M.D.
Pennsylvania
3400 Spruce Street, 5 Silverstein
Suite 5100
Philadelphia, PA 19104
United States Contact
Ala Streater
Clinical Coordinator
Megan Lawrence
Clinic Scheduler
Ginna Dietrick CRNP
Interventional Radiology Nurse Practitioner
Phone: (215) 662-3622 Fax: (215) 615-3545
Director: Scott Trerotola, M.D., Theodore Drivas, MD, PhD
Pennsylvania
200 Lothrop Street
Pittsburgh, PA 15213
United States Contact
Karen Radziminski, RN
Clinical Coordinator
412-648-6161 (adult); 412-692-5070 (pediatric)-Ask for UPMC HHT Center)
Director: Christopher Faber, M.D.
Texas
5303 Harry Hines Boulevard
Dallas, TX 75390
United States 214-645-2100
Director: John Battaile, MD
Utah
30 North 1900 East
Room 4A100
Salt Lake City, UT 84132-2140
United States Contact
Samantha Hill, RN
Coordinator
801-581-8188
Director: Kevin Whitehead, M.D.
Wisconsin
9200 W Wisconsin Avenue
Milwaukee, WI 53226
United States Contact
Kristen Gilbert
HHT Program Coordinator
414-805-3666 or 1-800-272-3666 (patients) 414-805-4700 (physician consult)
Director: Jake Decker, MD
Canada
Alberta
University of Alberta
105C Clinical Sciences Building, 11350-83 Ave
Edmonton, AB T6G 2B7
Canada 780-492-5879
Director: Dilini Vethanayagam, MD, FRCPC, Richard Owen, MB Bch, MRCP, FRCR, LMCC
Manitoba
300 Booth Drive
Winnipeg, MB R3J 3M7
Canada Contact
Mary Lou Waschuk
HHT Clinic Coordinator
Bonnie Clark
HHT Center Coordinator
204-837-0790
Director: Els Maria De Gussem, MD
Ontario
University of Toronto / St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
Canada Contact
Bethany Yake
Adult Coordinator
Nancy McDonald
Pediatric Coordinator
416-864-6060 ext. 2407 (Adult) 416-813-5837 (Pediatric)
Director: Marie Faughnan, M.D., Felix Ratjen, MD, PhD, FRCP(C)
Quebec
CHUM
264 René-Lévesque East, 2nd floor
Montreal, QC H2X 1P1
Canada Contact
Farah St-Pierre
Coordinator
514-890-8000 x 15672
Director: Andreanne Gauthier , MD
