North American HHT Centers of Excellence

Arkansas

4301 W Markham Street
Little Rock, AR 72205
United States
Contact
Lindsey Wyerick, RN
501-352-8159
Director: Mary Elizabeth (Mollie) Meek, MD

California

185 Berry Street, Suite 350, Lobby 6
San Francisco, CA 94107
United States
Contact
Daniel Langston, NP
Torianna Lomax, MS
HHT Patient Care Coordinator
(415) 353-8867 / 415-353-4503 (fax)
Director: Miles Conrad, M.D., MPH, Steven Hetts, M.D.

California

300 Pasteur Drive
Stanford, CA 94305
United States
Contact
Sheetal Vaghela, RN, BSN
Nurse Coordinator
650-498-1764
Director: Edda Spiekerkoetter, M.D., David Stevenson, M.D.

California

100 Medical Plaza
Suite 100
Los Angeles, CA 90095
United States
Contact
Samantha Tangchaiburana
HHT Center Coordinator
310-481-7545
Director: Justin McWilliams, M.D., Gary Duckwiler, M.D.

Colorado

12605 E 16th Avenue
Aurora, CO 80045
United States
Contact
Robin Hohsfield, RN
HHT Coordinator
720-848-5300
Director: Paul Rochon, M.D., Peter Hountras, M.D.

Connecticut

PO Box 208042
New Haven, CT 06520
United States
Contact
Katharine Henderson, MS, CGC
Tel: 203-737-1427 Fax: 203-737-1077
Director: Jeffrey Pollak, M.D., Katharine Henderson, MS, CGC

Georgia

1120 15th Street
BBR 5513
Augusta, GA 30912-3135
United States
Contact
Janie Sims, RN
Tel: 706-721-0470 Fax: 706-446-2815
Director: James Gossage, M.D.

Illinois

5841 S Maryland Avenue
Chicago, IL 60637
United States
Contact
New Patient Referrals: 773-702-2123
Zeena Darji, RN (Clinic Coordinator)
Current Patients: 773-702-4347
Zeena Darji, RN (Clinic Coordinator)
Emergency Referrals: 855-834-4782
Director: Issam Awad, M.D., MSc, FACS, MA

Indiana

8326 Naab Road
Indianapolis, IN 46260
United States
Contact
Shelby Gordon, RN
HHT Clinic Coordinator
(317) 871-0011 x123
Director: Magdalena Lewandowska, MD

Massachusetts

55 Fruit Street
Boston, MA 2114
United States
Contact
Pulmonary Hypertension Clinic
(617) 724-3705
Director: Josanna Rodriguez-Lopez, MD, Hanny Al-Samkari, M.D.

Maryland

1800 Orleans Street
Interventional Radiology Center, Charlotte Bloomberg Bldg, Suite 3287
Baltimore, MD 21287
United States
Contact
NEW PATIENTS: Johns Hopkins USA/Registration
Abby ext. 38033; Carlos ext. 38032; Racquel ext. 38032
RETURNING PATIENTS: Gina Robinson, MSN, RN, HHT Coordinator
[email protected]; 410-357-9817 (during COVID pandemic)
410-464-6555 (All Appts) / (410) 955-2307 (ENT)
Director: Clifford Weiss, M.D.

Minnesota

200 1st Street SW
Rochester, MN 55905
United States
Contact
Keri Jacobson
Tel: 507-284-2158
Director: Vivek Iyer, M.D., MPH

Missouri

660 S Euclid Avenue
#8052
St. Louis, MO 63110-1093
United States
Contact
Stacy Kocher, RN
Adult HHT Coordinator
Lynn Sekarski, RN
Pediatric Nurse Coordinator
314-454-8671 (adult) 314-454-2479 (pediatric)
Director: Murali Chakinala, M.D., FCCP, Andrew J. White, M.D.

North Carolina

6340 Quadrangle Drive
Suite 50
Chapel Hill, NC 27517
United States
Contact
Karen Smith, RN
Coordinator
919-966-2790
Director: Raj Kasthuri, MBBS, M.D.

New York

Herbert Irving Pavilion
161 Fort Washington Avenue, 3rd Floor
New York, NY 10032
United States
Contact
Jentyne Hamm
HHT Center Coordinator
Tasha Curry
HHT Center Coordinator
212-305-7470
Director: Keith Brenner, MD, Vladimir Sheynzon, MD, MBA

Ohio

3333 Burnet Avenue
Cincinnati, OH 45229
United States
Contact
Shannon Thornberry, BSN, RN II, CPHON
Program Coordinator
513-636-2084
Director: Adrienne Hammill, M.D., Ph.D., Manish Patel, D.O.

Ohio

9500 Euclid Avenue
Desk A90
Cleveland, OH 44195
United States
Contact
Doug Pederson, RN
Patient Care Coordinator
Kasi Timmerman
Study Coordinator
phone: 216-445-3636 fax: 216-636-2054
Director: Joseph Parambil, M.D., Keith McCrae, M.D.

Oregon

3181 SW Sam Jackson Park Road, OHSU L-605
Portland, OR 97239
United States
Contact
Brittany Steed, MA
Patient Care Coordinator and HHT Referral Intake
Tel: 503-418-6725
Director: Mark Chesnutt, M.D.

Pennsylvania

200 Lothrop Street
Pittsburgh, PA 15213
United States
Contact
Jessica Romania, BSN, RN
Program Coordinator
Natalie Covalt, RN
Coordinator
412-648-6161 (ask for UPMC HHT Center)
Director: Christopher Faber, M.D.

Pennsylvania

3400 Spruce Street
1115 Penn Tower
Philadelphia, PA 19104-4283
United States
Contact
Mary O'Dea
Assistant to Dr. Scott Trerotola
Anna Raper, MS, CGC
Phone: 215-615-3540 Fax: 215-615-3545
Director: Scott Trerotola, M.D.

Texas

5303 Harry Hines Boulevard
Dallas, TX 75390
United States
214-645-2100
Director: John Battaile, MD

Utah

30 North 1900 East
Room 4A100
Salt Lake City, UT 84132-2140
United States
Contact
Cherisa Chappell
HHT Patient Care Coordinator
801-581-8188
Director: Kevin Whitehead, M.D., Jamie McDonald, MS, CGC

Wisconsin

9200 W Wisconsin Avenue
Milwaukee, WI 53226
United States
Contact
Kristen Gilbert
HHT Program Coordinator
414-805-3666 or 1-800-272-3666 (patients) 414-805-4700 (physician consult)
Director: Jake Decker, MD

Canada

Alberta

8440 112 Street NW
Edmonton, AB T6G 2B7
Canada
780-492-5879
Director: Dilini Vethanayagam, MD, FRCPC, Richard Owen, MB Bch, MRCP, FRCR, LMCC

Manitoba

300 Booth Drive
Winnipeg, MB R3J 3M7
Canada
Contact
Mary Lou Waschuk
HHT Clinic Coordinator
Bonnie Clark
HHT Center Coordinator
204-837-0790
Director: Els Maria De Gussem, MD

Ontario

University of Toronto / St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
Canada
Contact
Bethany Yake
Adult Coordinator
Nancy McDonald
Pediatric Coordinator
416-864-6060 ext. 2407 (Adult) 416-813-5837 (Pediatric)
Director: Marie Faughnan, M.D., Felix Ratjen, MD, PhD, FRCP(C)

Quebec

CHUM
264 René-Lévesque East, 2nd floor
Montreal, QC H2X 1P1
Canada
Contact
Farah St-Pierre
Coordinator
514-890-8000 x 15672
Director: Andreanne Gauthier , MD
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