North American HHT Centers of Excellence
United States
1120 15th Street
BBR 5513
Augusta, GA 30912-3135
United States Contact
Janie Sims, RN
Tel: 706-721-0470 Fax: 706-446-2815
Director: James Gossage, M.D.
3333 Burnet Avenue
Cincinnati, OH 45229
United States Contact
Melissa Schrinner
Patient Coordinator
513-636-2084
Director: Adrienne Hammill, MD, PhD, Manish Patel, DO
9500 Euclid Avenue
Desk A90
Cleveland, OH 44195
United States phone: 216-445-3636 fax: 216-636-2054
Director: Joseph Parambil, M.D., Keith McCrae, M.D.
9200 W Wisconsin Avenue
Milwaukee, WI 53226
United States Contact
Clinic Coordinator
414-805-3666 or 1-800-272-3666 (patients) 414-805-4700 (physician consult)
Director: Jake Decker, MD
Sheikh Zayed Tower, Suite 7203
The Johns Hopkins Hospital
Baltimore, MD 21287
United States Contact
Johns Hopkins USA Intake
Joyce or Leiza
ENT Appts
Dr. Doug Reh
410-464-6555 (All Appts) / (410) 821-5151 (ENT)
Director: Clifford Weiss, M.D.
55 Fruit Street
Boston, MA 2114
United States Contact
Pulmonary Hypertension Clinic
(617) 724-3705
Director: Josanna Rodriguez-Lopez, MD, Hanny Al-Samkari, M.D.
200 1st Street SW
Rochester, MN 55905
United States Contact
Keri Jacobson
Tel: 507-284-2158
Director: Vivek Iyer, MD, MPH
177 Fort Washington Avenue
MBH 4-100
New York, NY 10032
United States Contact
Ana Perez
HHT Center Coordinator
212-305-7448
Director: Keith Brenner, MD, Vladimir Sheynzon, MD, MBA
3181 SW Sam Jackson Park Road, OHSU L-605
Portland, OR 97239
United States Contact
Tami Karjalainen, RN
Patient Care Coordinator
Brittany Steed, MA
New HHT Referral Intake
Tel: 503-494-7660
Director: Mark Chesnutt, M.D.
300 Pasteur Drive
Stanford, CA 94305
United States Contact
Aileen Li, ANP
HHT Center Coordinator
650-721-7256
Director: Edda Spiekerkoetter, M.D., David Stevenson, M.D.
4301 W Markham Street
Little Rock, AR 72205
United States Contact
Lindsey Wyerick, RN
501-352-8159
Director: Mary Elizabeth (Mollie) Meek, MD
185 Berry Street, Suite 350, Lobby 6
San Francisco, CA 94107
United States Contact
Daniel Langston, NP
Torianna Lomax, MS
HHT Patient Care Coordinator
(415) 353-8867 / 415-353-4503 (fax)
Director: Miles Conrad, M.D., MPH, Steven Hetts, M.D.
100 Medical Plaza
Suite 100
Los Angeles, CA 90095
United States Contact
HHT Center Administrator
310-481-7545
Director: Justin McWilliams, M.D., Gary Duckwiler, M.D.
5841 S Maryland Avenue
Chicago, IL 60637
United States Contact
New Patient Referrals: 773-702-2123
Zeena Darji, RN (Clinic Coordinator)
Current Patients: 773-702-4347
Zeena Darji, RN (Clinic Coordinator)
Emergency Referrals: 855-834-4782
Director: Issam Awad, M.D., MSc, FACS, MA
12605 E 16th Avenue
Aurora, CO 80045
United States Contact
Robin Hohsfield, RN
HHT Coordinator
720-848-5300
Director: Paul Rochon, M.D., Peter Hountras, M.D.
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC 27517
United States Contact
Karen Smith, RN
Coordinator
919-966-2790
Director: Raj Kasthuri, MBBS, M.D.
3400 Spruce Street
1115 Penn Tower
Philadelphia, PA 19104-4283
United States Contact
Mary O'Dea
Assistant to Dr. Scott Trerotola
Phone: 215-615-3540 Fax: 215-615-3545
Director: Scott Trerotola, M.D., Reed Pyeritz, M.D., Ph.D.
5303 Harry Hines Boulevard
Dallas, TX 75390
United States 214-645-2100
Director: John Battaile, MD
30 North 1900 East
Room 4A100
Salt Lake City, UT 84132-2140
United States Contact
Cherisa Chappell
HHT Patient Care Coordinator
801-581-8188
Director: Kevin Whitehead, MD, Jamie McDonald, MS, CGC
200 Lothrop Street
Pittsburgh, PA 15213
United States Contact
Jessica Romania, BSN, RN
Program Coordinator
412-648-6161 (ask for UPMC HHT Center)
Director: Christopher Faber, M.D.
660 S Euclid Avenue
#8052
St. Louis, MO 63110-1093
United States Contact
Stacy Kocher, RN
Adult HHT Coordinator
Lynn Sekarski, RN
Pediatric Nurse Coordinator
314-454-8671 (adult) 314-454-2479 (pediatric)
Director: Murali Chakinala, M.D., FCCP, Andrew J. White, M.D.
PO Box 208042
New Haven, CT 06520
United States Contact
Katharine Henderson, MS, CGC
Tel: 203-737-1427 Fax: 203-737-1077
Director: Jeffrey Pollak, M.D., Katharine Henderson, MS, CGC
Canada
300 Booth Drive
Winnipeg, MB R3J 3M7
Canada 204-837-0790
Director: Els Maria De Gussem, MD
University of Toronto / St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
Canada Contact
Rose Pantalone
Adult Coordinator
Susan Carpenter
Pediatric Coordinator
416-864-6060 ext. 2407 (Adult) 416-813-5837 (Pediatric)
Director: Marie Faughnan, M.D.
8440 112 Street NW
Edmonton, AB T6G 2B7
Canada 780-492-5879
Director: Dilini Vethanayagam, MD, FRCPC, Richard Owen, MB Bch, MRCP, FRCR, LMCC
CHUM
264 René-Lévesque East, 2nd floor
Montreal, QC H2X 1P1
Canada Contact
Anouk Gackowski, RN
514-890-8000 x 15672
