Massachusetts General Hospital

HHT Center of Excellence

HHT Experienced Clinicians
55 Fruit Street
Boston, MA 02114
United States
55 Fruit Street Boston, MA 02114 United States
HHT Center of Excellence
Director(s): 
Josanna Rodriguez-Lopez, MD
Hanny Al-Samkari, M.D.
Contact: 
Pulmonary Hypertension Clinic
Center Phone: 
617-724-3705
Ages Treated: 
Infants (0-1 years)
Children (2-12 years)
Adolescents (13-17 years)
Adults (18 years or older)
Treatments Provided
Hospital Reported Treatments: 
Bevacizumab IV
Brain AVM Angiography
Brain AVM Embolization
Brain AVM Gamma Knife or Other Type of Stereotactic Radiosurgery
Brain AVM Surgery (Other)
Capsule Endoscopy
Colonoscopy
Endoscopic Ablation/Coagulation
Extended Reach Endoscopy (e.g. Double Balloon)
Genetic Counseling
Genetic Testing
Heart Catheterization
In Vitro Fertilization (IVF)
Iron Therapy IV
Liver transplant
Lung AVM Embolization
Nasal Bipolar Electric Cautery
Nasal Coblation (Radiofrequency)
Nasal Laser Ablation
Nasal Septodermoplasty
Oral Laser Ablation
Other Drug Therapy (for Bleeding/Symptomatic Liver Vascular Malformations)
Overall/General Management of HHT
Pre-Implantation Genetic Diagnostics
Skin Laser Ablation
Upper Endoscopy
Conditions Treated: 
Anemia/Iron Deficiency
Heart Failure
Brain AVMs
Nosebleeds (Epistaxis)
Inheritance
Gastrointestinal (GI) Bleeding
Gastrointestinal (GI) AVMs/Telangiectasias
Liver Vascular Malformations
Lung AVMs
Oral AVMs/Telangiectasias
Pregnancy
Skin AVMs/Telangiectasias
Spine AVMs
Pulmonary Hypertension

Our HHT center includes Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye & Ear Infirmary.  This collaboration allows us to provide specialized care across the lifespan.

The Mass General HHT Center offers diagnosis, genetic counseling, multidisciplinary evaluations, and care coordination for people with this common (1/5000) genetic condition.  Our team works with a person’s primary-care provider to identify specialty care needs to improve outcomes.  We strive to create an “HHT medical home” while offering a wide range of specialists, treatments and education for the patient and their family.

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