University of California San Francisco

HHT Experienced Clinicians

185 Berry Street, Suite 350, Lobby 6

San Francisco, CA 94107

United States

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HHT Center of Excellence

Director(s):

Miles Conrad, MD, MPH

Steven Hetts, M.D.

Contact:

Daniel Langston, NP

Torianna Lomax Truong, MS

HHT Patient Care Coordinator

Center Phone:

Phone: 415-353-8867; Fax: 415-353-4503

HHT Center Website

Ages Treated:

Infants (0-1 years)

Children (2-12 years)

Adolescents (13-17 years)

Adults (18 years or older)

Treatments Provided

Hospital Reported Treatments:

Bevacizumab IV

Brain AVM Angiography

Brain AVM Embolization

Brain AVM Gamma Knife or Other Type of Stereotactic Radiosurgery

Brain AVM Surgery (Other)

Capsule Endoscopy

Colonoscopy

Endoscopic Ablation/Coagulation

Extended Reach Endoscopy (e.g. Double Balloon)

Genetic Counseling

Genetic Testing

Heart Catheterization

In Vitro Fertilization (IVF)

Iron Therapy IV

Liver transplant

Lung AVM Embolization

Nasal Bipolar Electric Cautery

Nasal Coblation (Radiofrequency)

Nasal Laser Ablation

Nasal Sclerotherapy

Nasal Septodermoplasty

Oral Laser Ablation

Other Drug Therapy (for Bleeding/Symptomatic Liver Vascular Malformations)

Overall/General Management of HHT

Pre-Implantation Genetic Diagnostics

Skin Laser Ablation

Upper Endoscopy

Young’s Procedure (Nasal Closure)

Conditions Treated:

Anemia/Iron Deficiency

Heart Failure

Brain AVMs

Nosebleeds (Epistaxis)

Inheritance

Gastrointestinal (GI) Bleeding

Gastrointestinal (GI) AVMs/Telangiectasias

Liver Vascular Malformations

Lung AVMs

Oral AVMs/Telangiectasias

Pregnancy

Skin AVMs/Telangiectasias

Spine AVMs

Pulmonary Hypertension

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